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IT IS THE BLOOD THAT BINDS US

Welcome

 

Welcome, and thank you for visiting Blood Bond Bleeding Disorder Network online. We hope that our website highlights a wide variety of support, community, brotherhood and advocacy available. Please feel free to read more about our network on this site. We would love to meet you and share with you our love vision for the future of the bleeding disorder community.

Our Mission

 

 

Blood Bond bleeding disorder network(BBBDN) exists to improve the quality of life for persons affected by hemophilia and other inherited bleeding disorders.

BBBDN supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrands disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle.

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Welcome to sneaker life
by Jourdan Watkins  

​Events

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Network Assistance's Programs.

 

 

 

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Community

Upcoming Events

  • Sat, Dec 19
    Location is TBD
    Dec 19, 2020, 7:00 PM
    Location is TBD
    Dec 19, 2020, 7:00 PM
    Location is TBD
    TBA
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  • An educational session on hemlibra
    An educational session on hemlibra
    Thu, Dec 10
    Zoom call
    Dec 10, 2020, 6:00 PM
    Zoom call
    Dec 10, 2020, 6:00 PM
    Zoom call
    This program seeks to educate those without inhibitors about hemlibra  The most recent product from genetech. Please RSVP with Jeff Watkins at bbbdn2015@gmail.com or at 773-653-1963
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  • Balancing Emotional Wellness
    Balancing Emotional Wellness
    Tue, Dec 08
    Zoom call
    Dec 08, 2020, 6:00 PM
    Zoom call
    Dec 08, 2020, 6:00 PM
    Zoom call
    We hope to see you at the balancing emotional wellness program which aims  to help all those with a bleeding disorder get in a better place emotionally. please contact Jeff Watkins bbbdn2015@gmail.com or at 773-653-1963 so you can RSVP
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  • Parenting with a chronic condition
    Parenting with a chronic condition
    Thu, Dec 03
    Call (773) 653-1963 If you wish to be added
    Dec 03, 2020, 6:00 PM
    Call (773) 653-1963 If you wish to be added
    Dec 03, 2020, 6:00 PM
    Call (773) 653-1963 If you wish to be added
    For parents with bleeding disorders, there are unique challenges that can directly impact family life. You may have a lot of questions, such as: “How do I talk to my kids about my condition? Is my partner feeling overwhelmed? What if a bleed interferes with our daily routine?”
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